Showing posts with label Diseases. Show all posts
Showing posts with label Diseases. Show all posts

Friday

Two Diseases, One Solution? How Omega-3s May Link and Treat RA and Lupus

 

How Omega 3 May Link & Treat RA & Lupus

Discovering a Shared Genetic Bridge and a Natural Therapeutic Hope

If you live with Rheumatoid Arthritis (RA) or Systemic Lupus Erythematosus (SLE/Lupus), you know the challenges are immense. What if scientists found that these two separate conditions have a much deeper connection than we previously thought—and that this shared root could be targeted by a familiar, powerful natural supplement?

A groundbreaking study indexed on PubMed suggests exactly this. By analyzing the genetic blueprints of RA and Lupus, researchers found a surprising common ground, pointing to omega-3 fatty acids as a potential "potent therapeutic" for both.

Here is what you need to know about this exciting research and what it could mean for your health.


The Unexpected Link: RA and Lupus Share a Genetic Story

For a long time, RA (a joint disease) and Lupus (a systemic disease affecting many organs) were treated as distinct battles. However, many patients experience symptoms of both, and doctors have long suspected a shared underlying problem.

The study used advanced technology called biological network analysis to look for common threads in the genes associated with both diseases.

The Key Discovery: Shared Signaling Pathways

Researchers found hundreds of shared genes that appear to be misfiring in both RA and Lupus. More importantly, these genes control the same critical biological systems, known as signaling pathways.

Think of these pathways as the communication lines within your immune system. When these lines are faulty, the body attacks its own tissues. The study found that common pathways like cAMP signaling and TGF-β signaling were involved in both conditions.

In simple terms: While RA and Lupus manifest differently, their immune systems appear to be running on the same faulty operating software. This shared "glitch" means that a therapy that fixes the software for one disease could potentially help the other.


The Therapeutic Breakthrough: Why Omega-3s Are the Focus

Once the common genetic pathways were identified, the researchers looked for molecules that could effectively "switch off" or regulate these faulty signals. Their spotlight landed firmly on one of the most studied health supplements: Omega-3 Fatty Acids.

The Role of ALA (Alpha-Linolenic Acid)

The study specifically highlighted a type of Omega-3 called Alpha-Linolenic Acid (ALA), which is naturally found in flaxseeds, chia seeds, walnuts, and some oils.

  • A "Master Key" Molecule: ALA was found to have a strong binding affinity to several "hub genes"—the central control genes in the identified faulty pathways.

  • The Power of Interaction: This suggests that ALA isn't just a general anti-inflammatory; it may be a highly targeted therapeutic that can directly interrupt the specific genetic malfunction shared by RA and Lupus.

This finding elevates omega-3s from a general wellness booster to a potentially mechanism-specific treatment for these autoimmune conditions.


Taking Action: What This Means for You

This research is incredibly hopeful, but it’s important to remember that it is a scientific study, not final medical advice. However, it strongly supports integrating healthy fats into your treatment plan.

1. Prioritize Your Omega-3 Intake

The science is clearly pointing to the power of these healthy fats. Work with your care team to ensure you are getting enough:

  • Focus on the Trio: Look for supplements that contain all three key Omega-3s: ALA (from plants), EPA (Eicosapentaenoic Acid), and DHA (Docosahexaenoic Acid—often from fish oil or algae).

  • Dietary Sources: Regularly include sources of Omega-3s in your diet, such as fatty fish (salmon, sardines), walnuts, flaxseeds, and chia seeds. To reach the 1,000 mg (1 gram) target, often studied for anti-inflammatory effects, here are some practical food amounts:

  • Food SourcePrimary Omega-3 TypeTo Get ≈1 gram of Omega-3Notes
    Salmon (Wild or Farmed)EPA + DHA3 - 4 ounces (a small fillet)Farmed salmon is often higher in Omega-3 than wild, but choose baked/broiled/grilled.
    Sardines (Canned)EPA + DHAA little less than 3 ounces (about 1 small can)Excellent source; look for sardines packed in water or olive oil.
    WalnutsALAA little over half cup (about 1.5 - 2 oz)Walnuts offer approx 2.5 of ALA per 1 oz (a small handful).
    Flaxseeds (Ground)ALAhalf to 1 TablespoonFlaxseed has approx 1.8 of ALA per 1 Tbsp. Grind them for maximum absorption.
    Chia SeedsALA2 to 3 TablespoonsChia seeds contain 2.5 of ALA per 1 oz (about 2.5 Tbsp).

Omega-3 Dosages for Autoimmune Conditions: What Research Suggests

Scientific studies on Omega-3s (specifically the marine-derived forms, EPA and DHA, often found in fish oil) have used varying doses, but offer a clearer picture for autoimmune patients:

ConditionGoalTypical Research Dosages (Combined EPA + DHA)Key Findings
General HealthDaily Maintenance250 mg – 500 mg per dayRecommended minimum by many health organizations for healthy adults.
Rheumatoid Arthritis (RA)Pain/Stiffness Reduction1,000 mg – 3,000 mg per dayHigher doses (2.7g daily) have been shown to significantly reduce joint pain, stiffness, and potentially lower the need for NSAIDs.
Systemic Lupus Erythematosus (SLE/Lupus)Reduce Disease Activity3,000 mg – 6,000 mg (3 to 6 grams) per dayTrials have shown a reduction in disease activity (measured by SLAM-R scores) and anti-inflammatory benefits at this range.
Safety ThresholdMaximum Safe IntakeUp to 5,000 mg (5 g) per dayThe FDA generally considers up to 5 grams of combined EPA and DHA per day safe for adults.

Note: Always read the supplement label! A 1,000 mg fish oil capsule may only contain 300 mg of combined EPA and DHA. Look for the actual amount of EPA and DHA per serving.


2. Discuss It With Your Doctor

If you are considering increasing your Omega-3 intake or trying a high-dose supplement, always discuss it with your rheumatologist or primary care doctor first.

  • Interactions: They can ensure the supplement won't interfere with your current medications (especially blood thinners) and help you determine the safest and most effective dose for your specific condition and overall health goals.

3. Stay Informed

This study opens the door for new clinical trials and research focused on utilizing omega-3s as a specific treatment strategy for RA and Lupus. The future of personalized autoimmune treatment looks bright!

TwHow Omega-3s May Link and Treat RA and Lupus


Thursday

How Diet Shapes Multiple Sclerosis: What Recent Research Reveals

 

How Diet Shapes Multiple Sclerosis: Recent Research

Living with multiple sclerosis (MS) means navigating not only symptoms and treatments, but also lifestyle choices that can influence the course of the disease. One of the most powerful—and often overlooked—factors is diet. A recent review published in Nutrients (MDPI, 2024) highlights how the foods we eat can either fuel inflammation or help calm it, shaping the progression of MS.

Why Diet Matters in MS

MS is an autoimmune condition where the immune system attacks the protective covering of nerves. While genetics play a role, environmental factors—especially nutrition—can tip the balance between inflammation and healing. Researchers now see the gut–brain axis (the connection between gut health and the nervous system) as a key player in MS.

How Diet Shapes Multiple Sclerosis: Recent Research

Fats: The Good, the Bad, and the Protective

  • Saturated fats (found in fatty meats, butter, coconut cream/milk, processed foods) tend to worsen inflammation and are linked to more active MS.

  • Monounsaturated fats (like olive oil and avocados) help reduce oxidative stress and support gut health.

  • Omega-3 fatty acids (from fish, flaxseed, walnuts) are strongly anti-inflammatory and may lower MS risk and improve outcomes.

  • Trans fats & ultra-processed foods disrupt gut bacteria and fuel inflammation.

 Carbohydrates: Quality Counts

  • Refined sugars and white flour spike blood sugar and drive inflammation.

  • Whole grains and complex carbs provide steady energy and support gut health.

  • Fiber is especially important—it feeds beneficial gut bacteria that produce short-chain fatty acids (SCFAs), which strengthen the gut lining and calm the immune system.

Proteins: A Mixed Picture

  • Red and processed meats may promote inflammation.

  • Dairy and gluten show mixed evidence—some people report sensitivity, but research is not conclusive.

  • Plant proteins (beans, lentils, soy) are generally more supportive of an anti-inflammatory diet.

 Fiber: A Star Player

Fiber-rich foods (vegetables, fruits, legumes, whole grains) consistently show protective effects in MS. By nourishing gut bacteria, fiber helps produce SCFAs that:

  • Strengthen the gut barrier

  • Reduce harmful immune activity

  • Support regulatory T cells (which keep inflammation in check)

Gut Microbiota: The Hidden Link

People with MS often show gut dysbiosis—an imbalance in gut bacteria. Diet is one of the strongest ways to restore balance. Eating more fiber, omega-3s, and plant-based foods helps cultivate a healthier microbiome, which in turn reduces inflammation in the brain and spinal cord.

How Diet Shapes Multiple Sclerosis: Recent Research

Practical Takeaways

If you’re living with MS, consider these dietary shifts:

  • Favor: olive oil, fatty fish, nuts, seeds, whole grains, legumes, fruits, vegetables

  • Limit: saturated fats (butter, fatty meats, coconut cream/milk), refined carbs, sugary foods, ultra-processed snacks

 Final Word

This research reinforces what many people with MS already sense: food matters. While diet isn’t a cure, it’s a powerful tool to support your body, reduce inflammation, and potentially slow disease progression. More clinical trials are needed, but the evidence so far points toward an anti-inflammatory, fiber-rich diet as a smart choice for living well with MS.

SOURCE: Read the full research

How Diet Shapes Multiple Sclerosis: Recent Research

Other posts you may be interested in:

High levels of alexithymia in patients with multiple sclerosis

Wednesday

Alternative Medicine and Ankylosing Spondylitis (AS): A Comprehensive Review

 Why This Review Matters

The article emphasizes that while conventional therapies (NSAIDs, DMARDs, biologics) remain central to AS management, their side effects and high costs drive interest in complementary approaches. 

This review systematically explores how alternative medicine—particularly herbal and traditional therapies—may help regulate inflammation, oxidative stress, and abnormal bone formation.

Pathogenesis and Symptoms

  • AS basics: An autoimmune disease causing chronic inflammation in the sacroiliac joints and spine.

  • Symptoms: Back pain, morning stiffness, sacroiliitis, and extra-articular issues (like eye inflammation).

  • Underlying mechanisms: Involves immune dysregulation, oxidative stress, and osteogenesis (new bone formation).

Diagnosis

  • Clinical signs: Chronic back pain before age 45.

  • Imaging: MRI and X-rays detect inflammation and joint changes.

  • Lab markers: HLA-B27 is often present but not definitive.

Alternative Medicine Approaches Highlighted in the Review

The authors detail several complementary therapies:

  • Herbal formulations: Plant-based decoctions and extracts that may reduce inflammation and regulate bone metabolism.

  • Moxibustion: A heat-based therapy from traditional medicine, shown to relieve stiffness and pain.

  • Acupuncture and Oriental medicine: Techniques that may improve mobility and reduce pain perception.

  • Lifestyle integration: Exercise combined with herbal remedies enhances outcomes.

These therapies target key disease processes—immune imbalance, oxidative stress, and abnormal bone growth—suggesting a holistic benefit.

Evidence and Limitations

  • Most findings come from cell and animal studies, with smaller clinical trials showing promise.

  • Large-scale human studies are still needed to confirm safety and effectiveness.

  • Alternative medicine should be used as complementary, not a replacement for conventional care.

Key Takeaways for People with AS

  • Alternative medicine offers supportive options alongside standard treatments.

  • Herbal remedies, moxibustion, and acupuncture may help manage pain and stiffness.

  • Always consult your healthcare provider before starting new therapies.

  • The future of AS management may lie in integrated approaches that combine modern medicine with traditional practices.

 You can read the full article here.

Alternative Medicine for Ankylosing Spondylitis

You may also be interested in:

Friday

Vitamin D and Its Link to Lupus (SLE)

Vitamin D and Its Link to Lupus

A study, published on July 31, 2025, explores how Vitamin D levels relate to systemic lupus erythematosus (SLE), an autoimmune disease.

Researchers reviewed 43 studies involving 2,940 SLE patients and 2,458 healthy people to understand Vitamin D’s role in lupus risk and severity.

Key Findings:

  • Lower Vitamin D in SLE Patients: People with SLE had much lower Vitamin D levels (by about 10 ng/mL) compared to healthy individuals.
  • Link to Disease Severity: Lower Vitamin D levels were tied to worse lupus symptoms, as measured by the SLEDAI score (a tool to assess lupus activity).
  • Impact on Immune Markers: Low Vitamin D was linked to higher levels of anti-dsDNA antibodies (a marker of lupus activity) and lower levels of C3 and C4 (proteins that help the immune system). Higher Vitamin D levels were associated with better C3 and C4 levels.
  • Study Quality: The studies were evaluated for quality, and while results were consistent, some limitations like study biases and language restrictions suggest caution in interpreting the findings.

Conclusion: Low Vitamin D levels are strongly linked to a higher risk and worse symptoms of lupus. Maintaining healthy Vitamin D levels may help manage lupus, but more research is needed to confirm these findings due to some inconsistencies in the studies.

Source: DOI: 10.1111/1756-185x.70379

Vitamin D and Its Link to Lupus


Wednesday

A Chinese Girl with NMOSD and Sjögren’s: case report

Case Report: A Chinese Girl with NMOSD and Sjögren’s Disease

A Chinese Girl with NMOSD and Sjogren’s

This case involves a 14-year-old Chinese girl diagnosed with two rare autoimmune diseases: neuromyelitis optica spectrum disorder (NMOSD) and primary Sjögren’s. NMOSD is a condition where the immune system attacks the central nervous system, particularly the optic nerves and spinal cord, causing symptoms like vision loss and pain. Sjögren’s is another autoimmune disorder that typically affects moisture-producing glands, like those for saliva and tears, but can also impact other organs.


What Happened?

- At age 11, the girl experienced sudden headaches, painful eye movements, and vision loss in her right eye. Tests showed she had NMOSD, confirmed by the presence of specific antibodies (AQP4-IgG) and MRI findings showing inflammation in her optic nerve.

- She was treated with strong anti-inflammatory drugs (methylprednisolone) and immune system support (immunoglobulin), which helped restore her vision. She was then put on long-term medications (prednisone and mycophenolate mofetil) to prevent further attacks.

- Later, tests showed she had elevated liver enzymes (ALT and AST), which led to further investigation. A biopsy of her salivary gland revealed signs of Sjögren’s, confirmed by specific antibodies (anti-Ro/SSA and anti-La/SSB). She met the official criteria for primary Sjogren's diagnosis.

- Because her liver enzymes remained high, her medication was switched from mycophenolate mofetil to tacrolimus, which normalized her liver function. She has not had any NMOSD relapses since the initial episode.


Why Is This Important?

- NMOSD and primary Sjögren’s are rare in children, and having both together is even rarer. This case shows the importance of checking for other autoimmune diseases in kids with NMOSD, as they can have additional conditions like Sjögren’s that need specific treatment.

- Regular testing for antibodies (like ANA or others) can help doctors catch these conditions early, improving treatment and quality of life. If someone with Sjögren’sdevelops neurological symptoms, testing for NMOSD is critical to avoid missing the diagnosis.

SOURCE: A Chinese girl with neuromyelitis optica spectrum disorder coexisting with primary Sjogren’s syndrome: a case report and literature review.

NMOSD and Sjogren’s: case report


Tuesday

Understanding coeliac disease

Whether you call it celiac disease or coeliac disease it is the same thing.

Here’s a rundown on everything you need to know about coeliac disease, from its symptoms to the necessity of a gluten free diet.

coeliac disease

Coeliac disease is an autoimmune condition where the body's immune system mistakenly attacks its own tissues when gluten is eaten. 

Gluten is a protein found in wheat, barley, and rye. 

This immune response damages the lining of the small intestine, leading to poor nutrient absorption and various digestive and non-digestive symptoms.

Symptoms of Coeliac Disease

Symptoms can vary from person to person but commonly include:

  • Digestive symptoms: Diarrhea, bloating, constipation, nausea, stomach pain, and gas

  • Nutritional deficiencies: Due to poor absorption of nutrients, leading to anemia, osteoporosis, and weight loss

  • Other symptoms: Fatigue, skin rash (dermatitis herpetiformis), headaches, joint pain, infertility, and neurological issues like numbness or tingling in hands and feet

Causes & Triggers

The exact cause is not fully understood, but it is linked to genetic and environmental factors. It is more common in people with a family history of the condition and those with other autoimmune disorders like type 1 diabetes or thyroid disease.

Diagnosis & Treatment

Diagnosis involves:

  • Blood tests to check for specific antibodies

  • Endoscopy with a biopsy to assess damage in the small intestine

The only treatment for coeliac disease is a strict, lifelong gluten-free diet. Even small amounts of gluten can trigger symptoms and cause long-term damage.

Foods to Avoid (Contain Gluten)

🚫 Wheat-Based Foods

  • Bread, pasta, cereals, crackers, and baked goods

  • Wheat flour, whole wheat, wheat bran, and wheat starch

🚫 Other Gluten-Containing Grains

  • Barley (including malt, malt vinegar, malt extract)

  • Rye

  • Triticale (a hybrid of wheat and rye)

  • Some oats (unless labeled gluten-free, due to cross-contamination)

🚫 Processed Foods That May Contain Hidden Gluten

  • Soy sauce, salad dressings, marinades

  • Some soups, sauces, and gravies (thickened with flour)

  • Flavored chips, fries, or seasonings

  • Beer and some alcoholic beverages

  • Processed meats (sausages, deli meats)

  • Some chocolates, candies, and ice creams


Safe Gluten-Free Foods

✅ Naturally Gluten-Free Grains & Starches

  • Rice (white, brown, wild)

  • Quinoa

  • Corn & cornmeal

  • Buckwheat

  • Millet

  • Sorghum

  • Certified gluten-free oats

✅ Protein Sources

  • Fresh meat, poultry, fish (unprocessed)

  • Eggs

  • Legumes (beans, lentils, chickpeas)

  • Nuts and seeds

✅ Dairy Products

  • Milk, yogurt, cheese (check for additives)

✅ Fruits & Vegetables

  • All fresh fruits and vegetables

✅ Gluten-Free Alternatives

  • Gluten-free bread, pasta, and cereals (labeled "gluten-free")

  • Gluten-free flour (almond, coconut, chickpea, rice flour)


Important Tips for a Gluten-Free Diet

🔹 Read Labels Carefully – Gluten can hide in unexpected places like sauces, seasonings, and processed foods. Always check for “gluten-free” certification.
🔹 Avoid Cross-Contamination – Use separate utensils, toasters, and cooking areas to prevent gluten exposure.
🔹 Dine Out Cautiously – Ask about gluten-free preparation when eating at restaurants.
🔹 Supplements & Medications – Some contain gluten; check labels or consult a pharmacist.


🍽 Gluten-Free Meal Ideas

🥞 Breakfast

✅ Gluten-Free Oatmeal – Certified gluten-free oats with almond milk, banana, and honey
✅ Egg & Avocado Toast – Scrambled eggs on gluten-free bread with avocado and tomato
✅ Smoothie Bowl – Blended banana, berries, and yogurt topped with nuts and seeds
✅ Chia Pudding – Chia seeds soaked in coconut milk with maple syrup and berries
✅ Gluten-Free Pancakes – Made with almond or rice flour


🥗 Lunch

✅ Grilled Chicken Salad – Mixed greens, grilled chicken, avocado, nuts, and a gluten-free dressing
✅ Quinoa & Veggie Bowl – Quinoa, roasted sweet potatoes, black beans, and a lemon dressing
✅ Rice Paper Wraps – Stuffed with shrimp, veggies, and a gluten-free peanut sauce
✅ Gluten-Free Sandwich – Turkey, cheese, and spinach on gluten-free bread
✅ Stuffed Peppers – Bell peppers filled with ground turkey, rice, and spices


🍲 Dinner

✅ Grilled Salmon & Roasted Veggies – With olive oil and herbs
✅ Gluten-Free Pasta – Made from brown rice or chickpeas, with marinara sauce and veggies
✅ Taco Bowls – Corn tortillas or a bowl with ground beef, salsa, and avocado
✅ Stir-Fry – Chicken or tofu with veggies over rice (use gluten-free soy sauce)
✅ Shepherd’s Pie – Mashed potatoes over seasoned beef and veggies


🍪 Snacks & Desserts

✅ Rice Cakes with Peanut Butter & Banana
✅ Hummus with Carrot & Cucumber Sticks
✅ Popcorn with Olive Oil & Sea Salt
✅ Yogurt with Gluten-Free Granola
✅ Dark Chocolate & Almonds
✅ Gluten-Free Brownies (made with almond flour)


🛒 Recommended Gluten-Free Brands & Products

Here are some trusted brands that make certified gluten-free products:

🥖 Bread & Baking

  • Udi’s – Gluten-free bread, muffins, bagels

  • Canyon Bakehouse – Sandwich bread, burger buns

  • King Arthur – Gluten-free flour and baking mixes

  • Bob’s Red Mill – Almond, rice, and oat flour

🍝 Pasta & Grains

  • Barilla Gluten-Free Pasta

  • Tinkyada Brown Rice Pasta

  • Banza Chickpea Pasta

  • Ancient Harvest Quinoa

🥣 Cereal & Snacks

  • Chex Cereal (Rice & Corn)

  • Kind Bars

  • LÄRABAR (most flavors)

  • Enjoy Life Cookies & Snacks

🌮 Sauces & Condiments

  • Tamari (Gluten-Free Soy Sauce) – San-J brand

  • Annie’s Naturals – Gluten-free salad dressings

  • Sir Kensington’s Ketchup & Mayo

🍻 Beverages

  • Gluten-Free Beer – Omission, New Grist

  • Hard Ciders – Angry Orchard, Strongbow

  • Safe Alcohols – Wine, tequila, rum, and most vodkas


✨ Final Tips

✔ Meal Prep – Plan ahead to avoid gluten exposure
✔ Grocery Shop Smart – Look for "Certified Gluten-Free" labels
✔ Experiment – Try different gluten-free flours and grains to find your favorites.


More reliable sources of information about coeliac disease: with evidence based and up to date resources:


🌍 International Organizations & Medical Sources

1️⃣ Coeliac UK – A leading charity in the UK providing research, support, and dietary guidance.

2️⃣ Celiac Disease Foundation (USA) – Offers education, gluten-free diet advice, and the latest research updates.

3️⃣ Beyond Celiac – Focuses on accelerating research for a cure and provides practical gluten-free living tips.

4️⃣ The Mayo Clinic – A trusted medical source with a clear explanation of symptoms, diagnosis, and treatment.

5️⃣ National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) – A branch of the U.S. government offering research-based information.

6️⃣ The Celiac Disease Center at Columbia University – Provides research findings and medical guidance from experts in the field.

7️⃣ World Gastroenterology Organisation (WGO) – Offers global guidelines on coeliac disease diagnosis and management.


📚 Scientific Research & Journals

If you're interested in scientific studies, you can find peer-reviewed articles here:
🔹 PubMed – Database of medical research studies
🔹 Google Scholar – Search for academic papers on coeliac disease
🔹 The American Journal of Gastroenterology – Publishes research on digestive diseases, including coeliac disease


🏥 Patient Support & Online Communities

If you're looking for practical tips, recipes, and community support, check out:
✔ r/Celiac – A Reddit community for coeliac discussions
✔ Facebook Groups – Search for "Coeliac Disease Support" groups
✔ Gluten-Free Watchdog – Monitors gluten levels in products


coeliac disease


Sunday

Support groups for children with Lupus and their families

Support groups for children with Lupus

Support groups can be really helpful for children with lupus and their families. These groups provide a space to share experiences, learn from others, and feel less alone. For children with lupus, support groups can also help them connect with others who understand what they're going through, while also providing emotional support and coping strategies. Here are some options for support groups and resources:

1. Lupus Foundation of America (LFA)

  • The Lupus Foundation of America offers a variety of resources for both adults and children with lupus, including support groups and online communities. They often have local chapters where families can connect with others.

  • Website: www.lupus.org

  • LFA has Children and Teens info here.

  • LFA also offers LupusConnect, an online community where patients and caregivers can connect.

2. Lupus Support Groups on Facebook

  • Facebook has many private support groups for people with lupus, including those specifically for children or families of children with lupus. These groups allow parents and children to share experiences, ask questions, and offer support to each other.

  • You can search for groups like "Lupus in Children" or "Pediatric Lupus Support" on Facebook to find active communities.

3. The American College of Rheumatology (ACR)

  • ACR offers information about pediatric lupus and can direct families to support resources and specialists.

  • Website: www.rheumatology.org

4. Children’s Hospitals and Pediatric Rheumatology Centers

  • Many children's hospitals or clinics that specialize in rheumatology will offer support groups or can direct families to local support options. For example, hospitals like Boston Children’s Hospital and Children’s Hospital of Philadelphia often have lupus-specific programs or support groups for young patients and their families.

5. Lupus UK

  • Although based in the UK, Lupus UK provides online support and resources for people with lupus worldwide, including for children and their families. They often have online forums and other virtual support options.

  • Website: www.lupusuk.org.uk

6. Online Forums and Communities

  • Websites like PatientsLikeMe and HealthUnlocked have communities where people living with lupus can connect, share experiences, and offer advice. Some forums are specifically for younger people or parents of kids with lupus.

7. Support from Rheumatologists and Social Workers

  • Many pediatric rheumatologists and social workers can help connect families with local support groups or peer mentors who have experience with pediatric lupus. It's always a good idea to ask your child's doctor about available local or virtual support options.

Benefits of Support Groups:

  • Emotional support: Connecting with others who truly understand the challenges of living with lupus can provide comfort.

  • Practical advice: Parents and children can share tips on managing symptoms, navigating school, or handling treatment.

  • Peer connections: Children can build friendships with others who are going through similar experiences.

  • Awareness and advocacy: Support groups can help families stay informed about new treatments, research, and advocacy opportunities for lupus.

Finding the right support group can make a big difference in coping with the emotional and practical challenges of lupus. If you're unsure where to start, talk to your child's doctor—they may have additional recommendations or connections to local groups.

Support groups for children with Lupus


Monday

Think psoriasis is just a rash? Think again.

Psoriasis is a chronic inflammatory disease characterized by patches of abnormal skin, that affects between 2 percent and 3 percent of the world’s population. But psoriasis is more than skin deep. It is associated with many diseases and the disease associations just keep growing.

Psoriasis and its associations to systemic diseases of a chronic inflammatory nature

Psoriasis and just some of its associations to systemic diseases of a chronic inflammatory nature


Bruce Jancin writing in Rheumatology News reported on information presented at the European Academy of Dermatology and Venereology. Published studies have linked psoriasis with significant increases in chronic obstructive pulmonary disease, multiple sclerosis, migraines, uveitis, pancreatitis, and abdominal aortic aneurysm.

Chronic Obstructive Pulmonary Disease (COPD) refers to a group of diseases that impair the flow of air to the lungs, making it more difficult to breathe.  A 2015 review concluded that people with psoriasis had an approximately two-fold greater risk of developing COPD, compared with the general population. The risk was higher in people with severe psoriasis. 

Multiple sclerosis is an inflammatory, autoimmune disease of the central nervous system that disrupts communications between the brain and other parts of the body. A meta-analysis of 43,643 patients with multiple sclerosis shows that these patients have an increased incidence and prevalence of psoriasis. Association of Multiple Sclerosis with Psoriasis: A Systematic Review and Meta-Analysis of Observational Studies.

Migraines are a common neurological disorder, characterised by moderate to severe headache and nausea. Psoriasis was found to be associated with an almost 4-fold increase in risk for migraine in US research at the New York University School of Medicine in 2019. Psoriasis and the risk of migraines in the United States.

Uveitis is inflammation in the eye which affects the middle layer of tissue in the eye wall. The results of a 2020 study revealed significantly increased risk of both prevalent and incident uveitis among patients with psoriasis. Psoriasis and Risk of Uveitis: A Systematic Review and Meta-Analysis

Pancreatitis is the inflammation of the pancreas, an organ that sits near the stomach and liver. A 2016 study demonstrated that patients with psoriasis are at a significantly elevated risk of CP and the risk increased with severity of psoriasis. The Risk of Chronic Pancreatitis in Patients with Psoriasis: A Population-Based Cohort Study. 

Abdominal aortic aneurysm is a localized enlargement of the abdominal aorta. Psoriasis was found to be an independent risk factor for abdominal aortic aneurysms (AAA), according to a 2016 Danish study, published in Arteriosclerosis, Thrombosis, and Vascular Biology: Nationwide Study on the Risk of Abdominal Aortic Aneurysms in Patients With Psoriasis.

Here is a list from the National Psoriasis Foundation/USA of Related Conditions of Psoriasis which also includes Cardiovascular Disease, Metabolic Syndrome, Obesity, Hypertension, Dyslipidemia, Diabetes, Anxiety and Depression, Inflammatory Bowel Disease, Cancer, Kidney Disease, Sleep Apnea and Hepatic (liver) Disease.


Video Comment by Dr Nathan Wei of the Arthritis Treatment Center : A more serious condition than we thought.

Nathan Wei, MD FACP FACR was a rheumatologist and Director of the Arthritis Center of Maryland. He was a Clinical Assistant Professor of Medicine at the University of Maryland School of Medicine at the time of creating this video.

Think psoriasis is just a rash? conditions associated with psoriasis