Sick and Tired of Feeling Sick and Tired

How many times have you said to yourself, 'No one can understand how I feel unless they've experienced it themselves?'  Well I am just starting a book where both the authors, a man and a woman,  have experienced an Invisible Chronic Illness and they are able to express feelings that I have experienced but have not even been able to put into words. They are both psychologists which helps and is also why there is a great
Guide to Emotional Health & Wellness in the book amongst many other things. They understand the effects of an invisible illness on self-esteem, self-concept, and the feelings of  guilt and shame, the frustrations, the lack of support and the suspicion we are often confronted with because our symptoms are not visible.

I am looking forward to reading the chapter called Getting and keeping the attention of the health care system because this is where I am at currently with my GP just saying dismissive things like "oh that's just your illness." He seems to think my health concerns are too complex, that I have been given a diagnosis and now I should be happy and go away.

The book, which I highly recommend, is called Sick and Tired of Feeling Sick and Tired: Living with Invisible Chronic Illness (New Edition) by Paul Donoghue and Mary Siegel

Find out more about this book

More on herbs to help immune sysytem: Bee Balm or Bergamont

Monarda didyma, a flowering plant in the mint family, is known by a number of different common names including bee balm, Oswego tea and bergamot. It is native to eastern North America.  The Oswego Indians often brewed the bergamot tea. The flavonoids (rutin, hyperoside, quercitrin, luteolin, quercetin) are found in leaves and flowers of bee balm.
Monarda fistulosa, is wild bergamot or horse mint and has a beautiful fresh aroma like a mix of citrus and mint.
Bee Balm is used as:
- an antiseptic
- carminative
- diaphoretic
- diuretic
To treat:
- colds, catarrh and sore throat
- headaches
- flatulence
- nausea
- menstrual pain
- insomnia

The leaves of both Monarda didyma and Monarda fistulosa, can be dried and used as tea. Fresh leaves add a refreshing flavour to fruit salads and drinks. It is traditionally used in apple jelly. The tea is a balm for sore throats and headaches. Oil within the leaves is used to treat insect bites and relieve bronchial congestion. "The Blackfoot Indians recognized the strong antiseptic properties of these plants and used poultices of the plant for skin infections, wounds, and mouth sores." MONARDA by HSA

  • PubMed: Analysis of flavonoids in the flowers and leaves of Monarda didyma by Savickiene N, Dagilyte A, Barsteigiene Z, Kazlauskas S, Vaiciūniene J. Lithuanian University of Health Sciences
  • Herb Society of America HSA MONARDA


Foods to support the immune system: part 2

sweet potato and spinach support your health
Sweet Potato Salad at My story in Recipes

Fresh vegetables strengthen your immune system naturally with immune-boosting vitamins.

Virtually every fresh vegetable is good to include in your diet if you suffer from autoimmune disease. It’s absolutely crucial that you maintain a well balanced diet when you have chronic illness to ensure you are getting all the nutrients you need.  So whether you are in a flare or feeling okay you need to eat for optimum nutrition. You may feel this is difficult when you are having a low energy day but if you have some washed spinach and some left over roasted or baked sweet potato you can make a meal to support your immune system.

The beta carotene in spinach and sweet potato, transforms into vitamin A, which triggers your immune response to keep you well.

Spinach and sweet potato are 2 of my go to veggies and I am so pleased they are packed full of Vitamin A and fibre.

Other info about these immune system supporting foods:


  •  prevents cancer and heart disease 

  • is rich in the mineral zinc

  • contains vitamin C that helps fight infection 

  • has B vitamins that give you energy

Sweet potato:

  • contains beta-carotene which your body turns into vitamin A which plays a major role in the production of connective tissue, a key component of skin

  • high in vitamin A, C and E

  • high in potassium

Spinach and sweet potato just happen to work so well together in many recipes and the flavours combine well with parmesan cheese, feta cheese, chick peas or other cooked beans and roasted nuts and seeds such as pine nuts and sunflower seeds.

Some recipes that use both spinach and sweet potato together:
Sweet Potato Salad at My story in Recipes
Roasted Sweet Potato and Feta Salad at Leite's Culinaria
Sweet potato fennel salad at Easy Healthy Recipes for kids
Kumera, Roast Tomato & Pine Nut Salad at Soul Kitchen

You might also like to read my previous post on this topic Foods to support the immune system: part 1


Function of T helper cells

Helper T cells

Helper T (TH) cells provide help to other cells in the immune response by recognizing toxin or other foreign substances (antigens) which induce an immune response in the body.
The Helper T cells then secrete chemicals called cytokines that activate T cells and B cells.  These chemicals stimulate the immune response. They help suppress or regulate immune responses and are vital to human immune responses.

DIAGRAM: Antigen-presenting cells (APCs) present antigen on their MHC molecules (MHC2). Helper T cells recognize these, with the help of their expression of CD4 co-receptor (CD4+). The activation of a resting helper T cell causes it to release cytokines and other stimulatory signals (green arrows) that stimulate the activity of macrophages, killer T cells and B cells, the latter producing antibodies. The stimulation of B cells and macrophages succeeds a proliferation of T helper cells.

Helper T cells are called the "conductors" of the immune system because they coordinate activity like the conductor of an orchestra.

Helper T (TH) cells are critical to coordinating the activity of the immune response.

RESOURCES: Cardiff University


Autoimmune Disease in focus: Giant Cell Arteritis GCA

Outline of side of face, showing superficial temporal artery in red. (to left of ear.) Grays Anatomy 1918.
The superficial temporal artery is a major artery of the head. Arteries are blood vessels that carry blood away from the heart.

The superficial temporal artery is often affected in giant cell arteritis which is also called temporal arteritis.  Sometimes the artery is biopsied to get a correct diagnosis.

Giant-cell arteritis is also called GCA, temporal arteritis, Horton's Disease or cranial arteritis. It is more common in women than in men and in people over the age of 55.

It is inflammation of the blood vessels in the face and head. It often presents as blurred vision or sudden loss of vision to one or both eyes as the blood supply to the eye is affected

The superficial temporal artery is enlarged in Migraine attacks.


Yoga can help relieve MS symptoms

Yoga and the immune system
I want to share how yoga can help you manage your MS symptoms. If you are struggling with fatigue learning just the deep breathing techniques alone will turn on your body’s natural relaxation response and oxygenate your blood more fully. When you consciously breathe more deeply through the practice of yoga you will feel calm and relaxed but at the same time energized. In addition, when you add yoga postures that move your body you will have less muscle spasticity and increased muscle strength leading to greater balance. 
A recent study conducted by Evan Cohen and David Kietrys, physical therapists and associate professors in the School of Health Related Professions at Stratford showed the following results: "…at the end of an eight-week trial those who participated were better able to walk for short distances and longer periods of time, had better balance while reaching backwards, fine motor coordination, and were better able to go from sitting to standing. Their quality of life also improved in perceived mental health, concentration, bladder control, walking, and vision, with a decrease in pain and fatigue." These findings were presented on September 26 at the Symposium on Yoga Research at the Kripalu Institute in Massachusetts. "This study, I hope, is one of many that will give us the clinical information we need," said Fogerite. "Yoga is not currently being widely prescribed for people with MS, although it might turn out to be a very helpful treatment."

One of the study participants had the following to say about her experience…

"What was so nice about this experience was that although everyone was at a different level of the disease, we felt like we were all together, so I think the camaraderie helped," said Meltzer. "And it wasn’t just about gaining more mobility and balance in our legs but our arms and necks felt stronger as well."

I have MS myself and yoga is a big part of why I am so mobile and strong in my body. I want to share yoga with everyone I know, but especially those people with MS, because it can change their lives. I offer several chair yoga classes and also work one on one with people to help them develop a home practice. If you are interested in learning more feel free to contact me at

Janet Golownia RYT, PYT, Certified Health Coach

Janet Golownia is passionate about unlocking the body’s ability to heal itself through a variety of yoga tools and nutrition.  She has learned from healing her own health issues of hypothyroidism, depression and multiple sclerosis that healing takes place not only on the physical level but also the energetic and emotional levels.  As a Yoga Therapist and Certified Health coach she will develop a personalized plan of healing for each client based upon their goals.  Some of the many benefits experienced by her clients are relief of chronic pain, greater core strength, increased flexibility and range of motion, greater body awareness and mental clarity.

Read more about Janet's personal story and mission with health 


Metabolic syndrome can be reversed

Metabolic syndrome can be reversed with diet

A Mediterranean diet which includes olive oil, nuts, fish, complex carbs and vegetables can reverse metabolic syndrome according to Spanish research published in the Canadian Medical Association Journal.

Metabolic syndrome is a group of abnormalities in normal function and chemical processes associated with the development of cardiovascular disease and type 2 diabetes.
“Mediterranean diets supplemented with olive oil or nuts were not associated with a reduced incidence of metabolic syndrome compared with a low-fat diet; however, both diets were associated with a significant rate of reversion of metabolic syndrome,”  Nancy Babio, PhD, with Jordi Salas-Salvadó, MD, PhD wrote.

Find out more about this Mediterranean diet here including links to recipes.
Get Mediterranean diet breakfast suggestions here.


What Is Palindromic Rheumatism?

Palindromic Rheumatism
Palindromic rheumatism gets its name from the word “palindromic,” which means to come again.  In rheumatism it tells you that this joint condition begins and ends and then comes again.
Palindromic rheumatism (PR) consists of sudden and rapidly developing attacks of arthritis. There is acute pain, redness and swelling of one or multiple joints.
PR is a rare type of arthritis, and is closely related to a more common condition, rheumatoid arthritis (RA).

Fast PR facts:
  • Usually occurs in hands and feet.
  • Joints appear normal on an X-ray when you are not experiencing pain.
  • An episode of pain and swelling can be as short as a few hours.
  • Lengths of a PR episode vary from person to person.
  • Researchers believe it is strongly connected to RA.  
  • People with PR often have many of the same protein markers as people with RA.
  • connection between PR and antiphospholipid syndrome. The immune symptom of a person with antiphospholipid syndrome attack the normal proteins in the body.
  • PR is most often diagnosed in people between 20 and 70.
  • Both men and women are affected equally.
  • People with the rheumatoid factor protein are more likely to develop PR.
  • Diagnosis is difficult as there is no single test that can diagnose PR.
Healthline has a good slide show about Palindromic Rheumatism


What doctor to see for an autoimmune condition

specialists for an autoimmune condition
Doctors have great knowledge in their area of specialisation.
There are many kinds of specialists in medicine and knowing what each does can be helpful to people seeking a diagnosis of an autoimmune disease or having an autoimmune disease. Specialists are helpful in managing autoimmune disease symptoms. You may need to see a variety of different specialists to help manage your symptoms and slow the progression of your disease. Your family doctor will write a referral to the specialists you need and will help you manage your care.

This list of specialists is arranged alphabetically.
It is not a full list.

Allergist and Immunologist
Treat disorders of the immune system such as asthma, eczema, nasal allergies, food allergies, and immunodeficiency diseases.

Study the heart and treat disorders of the heart and blood vessels.

Cardiovascular Specialist
 Diagnose and treat diseases of the heart, lungs, and blood vessels and manage cardiac conditions such as heart attacks.

Diagnose and treat disorders of the skin, mouth, external genitalia, hair, and nails, such as skin cancers, moles, allergic disorders, and scarring.

Diagnose and treat disorders of the endocrine system such as thyroid and adrenal gland problems and disorders such as diabetes, pituitary diseases, and menstrual and sexual problems.

GastroenterologistDiagnose and treat problems of the stomach, pancreas, intestines, liver, and gallbladder, such as abdominal pain, ulcers, cancer, and jaundice.

Diagnose and treat disorders of the kidneys, high blood pressure, and fluid and mineral imbalances. 

Diagnose and surgically treat problems of the nervous system (including the brain, spinal cord, and nerves) and the blood vessels and structures that support that system.

Pain Management Specialist
Treat people experiencing acute and chronic pain.

RheumatologistDiagnose and treat diseases of joints, muscles, bones, and tendons such as arthritis, back pain, and common athletic injuries. .

A full list of specialties and subspecialties that physicians enter, and descriptions of what the specialists do can be found at The Harvard Medical School. 
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