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Share your story about autoimmune disease


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7 comments:

  1. I have Fibromyalgia and have had it for a long while, it never goes away and impacts on my daily life and my family too.

    ReplyDelete
  2. Hi, I am a female, over 40, living in Australia, who has Sjogren's Syndrome - an annoying, common but little known condition. I have a blog which I hope is useful to connect people with Sjogren's and provide information about it. Thanks.

    ReplyDelete
  3. Anonymous2:17 AM

    I know I am late in talking, but I want to share my story. In 1993, I became ill and it never stopped. In 1994, I was diagnosed with fibromyalgia. I had to quit school, but I did get what felt like a remission off an on from 1996 to 2000. Once my twins were born, I got sick again. It started with severe pain and multiple surgeries and issues happened after their birth. I eventually was put on pain meds. Then, in 2003, I was diagnosed with Graves' disease and my thyroid was destroyed. It didn't stop my illness. I continued to struggles with strange symptoms. In 2009, things got even worse than they had been. Every year through 2011, I was housebound and confined to my bed or recliner from Spring until late fall at least. I ended up in a wheelchair. In 2011, I was diagnosed with Sjogren's by my eye doctor. Shortly thereafter, I was diagnosed with immunoglobulin A deficiency and tested positive for a Celiac gene. I started treatment after seeing a Chinese physician specializing in autoimmune disease around the same time. The clinic identified everything these issues and more. I am still struggling but I am not wheelchair bound, can walk, eat, but I am still needing healing. I am going to provide a link to my cause and blog. Thank you for listening, looking, and if you will, sharing my story.

    ReplyDelete
  4. I wanted to provide my blog, but I couldn't sign in. My story was sent and is pretty long. To see it, visit apursuitofhappyness.com or you can read my story, help, or pass it on.

    Here is one more link: http://www.youcaring.com/medical-fundraiser/cheryl-s-medical-fund/40186

    I do want to mention the treatment low dose naltrexone to everyone here.

    Thanks!

    ReplyDelete
  5. Hi,

    I decided to send this all again in one post. I figured it would be hard to put it together otherwise.

    I know I am late in talking, but I want to share my story. In 1993, I became ill and it never stopped. In 1994, I was diagnosed with fibromyalgia. I had to quit school, but I did get what felt like a remission off an on from 1996 to 2000. Once my twins were born, I got sick again. It started with severe pain and multiple surgeries and issues happened after their birth. I eventually was put on pain meds. Then, in 2003, I was diagnosed with Graves' disease and my thyroid was destroyed. It didn't stop my illness. I continued to struggles with strange symptoms. In 2009, things got even worse than they had been. Every year through 2011, I was housebound and confined to my bed or recliner from Spring until late fall at least. I ended up in a wheelchair. In 2011, I was diagnosed with Sjogren's by my eye doctor. Shortly thereafter, I was diagnosed with immunoglobulin A deficiency and tested positive for a Celiac gene. I started treatment after seeing a Chinese physician specializing in autoimmune disease around the same time. The clinic identified everything these issues and more. I am still struggling but I am not wheelchair bound, can walk, eat, but I am still needing healing. I am going to provide a link to my cause and blog. Thank you for listening, looking, and if you will, sharing my story.

    To see it, visit apursuitofhappyness.com or you can read my story, help, or pass it on here: http://www.youcaring.com/medical-fundraiser/cheryl-s-medical-fund/40186

    I do want to mention the treatment low dose naltrexone to everyone here.

    Thanks!

    ReplyDelete
  6. Thank you all for sharing your autoimmune stories. look forward to reading more

    ReplyDelete
  7. Hi. I have Crohn's, fibromyalgia, and chronic uveitis. I am trying different ways to get better. You can follow my journey on my YouTube channel 33 going on 80

    ReplyDelete

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